Tuesday, July 28, 2009

I am the forgotten element to the equation.
I didn't realize it till someone said, "we haven't forgotten this effects you too."
Most don't ask me how I am.
And those who do, don't want to know.
To tell the truth, my game face is failing.
If you look you won't have to ask.
And I, won't have to filter it for you.
The emotional barriers
came crashing
down
And I crumpled
in a pile of
tears
Weeping with water
beating against
me
And the curtain
caught under my
knee
Strained to move
to breath
I choked on
words in
heaves
Sounds were distant
reality was
lonely
And helplessness is
inevitable

Friday, July 24, 2009

Hearts and Causes on your Sleeve

Was doing some searching around for Pancreatic Cancer Awareness garb and found this great site that has just about anything for just about any cause you like.

Thursday, July 23, 2009

I've seen an
out pouring
of love from
a community
scattered across
the country
I have been
touched by
strangers who
offer aid without
knowing me or
my family
I feel a slight
twinge of regret
for taking these
people for granted
and realize I will
and forever be a daughter
of them all
The sun stings
my eyes
and my heart
As another day
has risen and
time has not
ceased it's assault
I want to bury
in a cloud
of softness
Cover up in a
sea of blankets
from sun up to
sun down

So You Think You Can Dance

Ok, this dance was about breast cancer but it hit home with me as well.

Tuesday, July 21, 2009

They built the
world around me
and half the walls
are crumbling
I would like
to face this
with a
we will not
let the terrorist
win kind of
mentality
But that can
only be upheld
so long
I wish badly
to up root
my existence and
run wild for
time is short
Metastatic Pancreatic Adenocarcinoma
Metastatic Pancreatic Cancer
Metastasized Pancreatic Cancer
Pancreatic Carcinoma
No matter how
it's said
spoken
worded
sucks.
I feel
tired
Worn down into
dirt
I want to
crumple
to the ground
Scream at
the top of
my lungs
And have
no one
ask why
I deliver
news
To which
there is
nothing
to say

Back to Regular Life

I returned to work today. It's kind of surreal. I feel like I'm going through the motions of work and nothing feels normal/right.

A touch of
normalcy
In the heart
or someone
suffering
Is awkward
7/17/09

I waited too
long to
be
I waited too
long to
admit it all
I waited too
long to
say I love you
I waited too
long for
everything
I waited too
long thinking
I had time
I waited too
long
and now time
is short
7/17/09

I want to
crawl into a
dark place
I want to
hide there
for infinity
I want to
wait for
time to reverse
I want different
results
7/17/09

Don't make me
play this roll
I don't know
how
I don't know
what to put out
I don't know
what to do
I don't know
what happened
I can't
find me
7/17/09

Why ask why
of all the
why's
in the world
Why this one
7/17/09

Don't tell me
the possibilities
When I'm
lost
Don't cover for
lost coherence
Just stop
make it all
stop
7/17/09

I didn't ask
for opinion
I didn't request
your thoughts
Keep and over abundance
of reality to
yourself
Wait for me
to react and
you'll see
I know
reality's weight
7/17/09

It's a simple
thought
It's an easy
image in white
It should be
pleasant
But minus one
a dress is
lost
in sadness
7/17/09

The day was
exactly the same
The routine didn't
change
But Cancer
changes everything

Metastatic Pancreatic Cancer

I'll begin this piece by saying I'm still in a certain state of shock. But I'll tell you a bit about myself. My name is Sara and I'm 25 years old. I graduated college last year and moved out of my parents' home into an apartment with my boyfriend, whom I've been with for almost three years now. Two weeks ago I went to visit my family for the 4th of July. My mother looked fine and my father was acting kind of odd. After returning home I was on the phone with my mom and asked her if something was wrong with dad. She told me he was fine and preceded to tell me that they had just found out that her liver enzymes were not correct.

Fast forward three days and my mother is in an immobilizing amount of pain from her right leg. My father forces her to the ER (coincidental I just noticed that this day was also their anniversary). Come to find out she has a blood clot from her ankle through her knee and up 4 inches of her thigh. The doctors put her on blood thinners and she goes home.

Three days later again she vomits blood, back to the ER. The doctor at the ER is very concerned about her liver and has her come in for an ultrasound. She has two masses on her liver, and gal bladder diseases with stones. They recommend a CT.

Tuesday morning I get up and head for my parents place to help them put on an event their hosting. When I got there they had just come home from the CT. Two hours later they went back for results. My dad calls me to tell me they're sending her to Salt Lake City (they live in a small town in Montana). He later calls back and tells me to pack her bag and bring my suit case. The health insurance company kept telling the doctors to call back tomorrow for a life flight. I get to drive her 6 hours to the University of Utah Hospital. We get there at 12am. The do the biopsy the next day. My boyfriend accompanied my father down and they arrived at 10am.

Flash forward to Thursday the 16th. Biopsy is Cancer. Move forward to Friday and it's 4th stage Metastatic Pancreatic Cancer involving the Pancreas, Liver, Spleen, and Spleen Artery.

My purpose of this blog is to touch base with the world and talk about what's happening with her progression and to emotionally vent. I am a poet and therefor there will be lots of poems here. I feel like someone has just told me that the best years of my life will no longer exist. I can't seem to get enough oxygen in my lungs and I can't stop think about a wedding dress and how if I don't move now she won't be there to help me pick it out.